Some Answers Come In Mysterious Ways

 

My husband passed away on June 8, 2021 at the age of 76.  His sudden death was a surprise to us even though he was living with a little known or understood genetic disease.  People would ask his cause of death, and I had to be very vague.  It wasn't because I didn't want to talk about it, but it was because we really didn't know until recently.  Comedian Gilbert Godfrey died on April 12, 2022.  His cause of death was heart failure as a result of Myotonic Dystrophy.  Through the media reports and facts about the disease posted by his family, we have learned more about what most likely happened to my husband Mike. 

Let me start from the beginning.  Several years ago my husband's brother was having some muscle and swallowing difficulties.  He went to several doctors and was finally diagnosed with a disease called Myotonic Dystrophy.  It is an inherited disease that affects the muscles.  There are two types.  Type 1 usually appears in the early years of life and is very debilitating.  Type 2 doesn't appear until middle adulthood.  The symptoms are so subtle that it doesn't always cause obvious problems for a long time.  My husband was so strong and capable it didn't occur to us that having cataracts at age 50 was anything out of the ordinary.  Most doctors know nothing about this disease and most have never even heard of it.  Years went by before his brother found out his diagnoses and alerted my husband to the problem.  Being in denial, we felt terrible for his brother, but since inheriting it was a 50/50 chance, we assumed that he was fine.  He was fine for many years and then gradually he began having some difficulty saying some words and swallowing certain foods.  He checked out healthy for his wellness checkups so there were no red flags.  Then about three years ago he was having soreness in his shoulder and was sent to physical therapy.  He told the therapist that he probably over did the exercise because he was having discomfort near his upper chest.  They told him that wouldn't be where he would feel pain and to go directly to the doctor.  He found out that day that he had A-fib or Atrial Fibrillation.  We were just about to go on vacation but the doctor assured us it would be fine.  He was given medication, and we were told to monitor his heart rate and blood pressure.  I have to say we were a bit obsessed with doing that because this was the first time heart issues were ever mentioned.  We were on vacation with my sister and brother in law.  I am sure we were not much fun on that trip with this new diagnosis in our minds.  When we returned home from our trip, we had the first appointment with a cardiologist.  His first words were "why do you talk like that".  We explained the Myotonic diagnosis and that it sometimes affects speech.  The doctor pretty much ignored that and said his Afib was probably caused from sleep apnea.  He ordered a sleep study and sure enough that is what he had.  We got set up with a  CPAP machine and all was well.  Mike hated the machine and had a hard time finding a proper mask, but he used it religiously every night.  He checked out good with the heart doctor and only needed to see him every year.  That was until last spring, about a year ago.  He had a routine echocardiogram and it found he had some numbers that weren't great.  It was suggested he get more tests and possibly a pacemaker.  They said the lower chambers in his heart weren't beating in unison.  We were set up for further testing, but before that appointment could even happen his heart rate started being erratic and we went to the ER.  He spent the next 12 days having tests and procedures.   He was written off by almost every doctor he saw.  They passed the buck from one to the other.  No one could give us good answers and not one knew anything about Myotonic Dystrophy except what they read on the internet.  After 12 days of getting nowhere we just wanted to go home.  A few days later he suddenly and peacefully died.  At the time we didn't really know what happened, he just went to sleep.

Now back to the Gilbert Godfried story.   Shortly after his death we received a text from someone about Gilbert's cause of death.  It was from ventricular tachycardia, a result of his long illness with Myotonic Dystrophy.  Included with the death notice was information that we had never heard or seen before.  It stated that this Myotonic Dystrophy disease can present itself in many forms depending what muscles are affected.  It can be legs and arms, eyes, breathing, swallowing, vocal cords or the heart.  It said death can be sudden from a fatal drop in blood pressure. Ventricular tachycardia is a rapid heartbeat preventing the heart from pumping enough blood into the body.  If this lasts too long it can cause the heart to stop beating.  That is exactly what happened, my husband's heart just stopped beating. 

Gilbert Godfried's family has requested donations be made to the University of Rochester for Myotonic Research.   They are doing research and gathering information.  I could never have imagined that the death of a well known personality would answer some of our questions.  Hopefully awareness and research can bring successful treatments and early diagnosis to peoples lives so they can live healthy productive lives.  One of the neurologists we saw said, "this disease won't kill you but problems created  from it could".  He was so right.  

https://www.rochester.edu/giving/crowdfunding?cfpage=/o/university-of-rochester/i/rochestergives/s/myotonic-dystrophy-type-2-research 

Princess My Party

As my life plods along day to day I noticed it moves at a much slower pace.  Mentally, physically and emotionally I have turned from the Energizer bunny to the tortoise, but the days and years still pass by quickly.  As long as I close the circles on my smartwatch, I feel pretty accomplished.  Anyone who doesn't know about a smartwatch, it allows you to set standing, exercise and moving goals.  I have to stand up every hour for 12 hours, I have to exercise 30 minutes a day and move enough to burn at least 270 calories.  This was a good day.  They aren't all like that but I try.

Some people are motivated without the encouragement of devices or others, but I'm not one of those people.  I have to see it in a tangible form to be accountable.  It could just as easy be a pencil and paper, but a smartwatch is more fun.

As the days go by for me, they also zoom by for everyone else.  That includes my family.  One day your grandchildren are toddlers and the next they are grown adults.  I have written about all of them over the past ten years.  Yesterday my granddaughter came over to do a project for her part time job, and I realized that it's been a long time since I wrote of her.  I started blogging when she had just turned twelve, and she didn't appreciate me sharing everything.   Now she is 21.  I asked if I could write about her latest endeavor and she said "yes".  She said I had been posting without her permission for years so it was fine.  I thought I had been really good about over sharing, but apparently not perfect.

I admit I have posted about her love for acting and the high school plays.  After high school and since the start of COVID she hasn't had much opportunity for performing.   This winter she remembered being told of a company she may be interested in.  During her senior pictures the photographer could see she had a flare and suggested she look into a company called Princess My Party.  She called them and was hired.  She has a full time job but this was the opportunity for a part time job doing what she loves.  She gets to dress up as characters. It's mostly parties for children or an event of some kind.   The people that hire them can choose the character and activities such a story reading, face painting, singing and others.  She has been mascots like Paw Patrol and the Easter Bunny, Barbie, Anna from Frozen 2, Ariel from the Little Mermaid and many others.   She will be at my house tonight to do a Facebook live.  

Here are just a couple photos I have.  I didn't dare copy from the www.princessmyparty.com website.  They are on all forms of social media if you want to search for Princess My Party.  

Our life is a culmination of all of our memories.  Some are good and some are bad.  Not one person has the same life story.  I have a feeling no matter how long my granddaughter sticks with this job, she will always remember it fondly. 

What To Do With Old Slides and Movies?

Over the years I have talked about many small appliances but rarely do I write about technology items that I can't live without.  I was reminded of this from a recent photo I posted on Facebook.  It was taken from a 45 year old slide.  In the 1970's nothing was digital.  If you took photos, you would load film into the camera and take the pictures.  You never knew if they were good or bad until you had the film developed.  You could get printed pictures or have them made into slides.  Those slides had to be viewed on a special projector.  We thought it was great to see our pictures on the big screen.  It was a version of the old movie camera.  Those movies were put on reels and were also shown on a screen with a special projector.  Never did any of us think we could some day take photos or movies from our phones.  Now if a shot doesn't turn out, we just delete it and try again.  

We had a lot of slides from the early 1970's.  I had them in a box and out of sight.  One day as I was cleaning and organizing, I came across them.  I held them up to the light and could tell they were from a long time ago.  This is when I decided to google saving slides to the computer.  Surprisingly there were a lot of options, but I decided to order this.  It is a slide viewer.  If you like the picture and you want to save it, it can be saved on an SD card or you can transfer it to your computer.  It was a lot of fun viewing these old pictures.

I had just recently gone through all of our old slides, when we received a package in the mail.  It was from my husband's brother.  He had taken all their old family movies from the 1940's and had them put on CD's.  We had only viewed these movies on a jumpy old projector, but now they are preserved on disks.  They will be preserved until CD's are obsolete and then the next generation will have to figure out how to view them with more modern media.  I know we still have several BetaMax tapes that can't be viewed.  We even bought a machine that converts tapes from Beta to VHS but you needed a Beta machine and a VHS machine.  I managed to figure out converting VHS tapes but not the Beta machine.  The Beta player was so old, it chewed up the first beta tape we tried to copy.  Technology changes faster than we do so we still can't view them.   Maybe there is a magic device that can save these BetaMax tapes but I don't know about it, so I will pack them up for someone else to throw away in the future.  For now, I have some old movies and special slides saved. The color isn't always so good, but the originals were not of the quality we enjoy today.  They were fun to discover.

 My grandma and grandpa.

Me and my oldest daughter from 1973.

Oldest daughter shoveling snow.

St. Patrick's Day and Spring Break 2022

Every year our family celebrates St. Patrick's Day.  It is one of our favorite holidays, and I have written about it on this blog for nine years.  My husband especially loved the holiday mainly because he liked corned beef and cabbage and there were none of the pressures associated with a holiday like Christmas. He passed away last summer, but since he loved it so much we wanted to honor him by continuing the tradition.

I prepared fifteen pounds of corned beef and two racks of barbecued ribs along with a lot of sides and sweets, but nothing ever goes completely as planned.  The day of our dinner, my oldest daughter called.  Her husband and oldest son had a stomach virus,  Neither of them were even able to get out of bed.  We knew this virus was going around but no one had gotten it yet.  Since they didn't want to spread it to the rest of us, none of them came.  Suddenly half of our group would be missing.  Despite missing everyone, we had a great time and a lot of leftovers which were enjoyed later.  

Our leprechaun named Shamus had started to move back into his summer home.  He is a tricky little guy, but some new household items appeared in his house so we knew he was in the area.  His home needs a little upgrading before he moves in permanently.  It will be exciting to see what he does with the place.  Just search for St. Patrick's Day in the search bar if you want to follow the hunt for Shamus over the years. 

My grandson Ewan made a beautiful Leprechaun cake.  He is always up for a challenge and this definitely was that.  He posted the process on his YouTube channel Old Time Skills.  Leprechaun Cake  

It was a nice day, but the next day or two, the virus hit again.  Two more members of the family got sick even though they had no contact with the others.  

Five days later it seemed that everyone was feeling good and on track.  I had planned a short Spring break trip to Florida with my family.  It had been a long winter, and we were looking forward to a little warmth and sunshine.  Six of us headed to the airport, we went through security and were waiting at our gate.  Then it happened.  The virus hit again.  Another person got sick.  This time it was my thirteen year old grandson.  There was no way he could fly.  My daughter cancelled their tickets and took him back home leaving me with a 17 year old, a 21 year old and my son-in-law.  My daughter had planned to take another flight the next day.  It didn't happen.  It was impossible to make connections and still have time in Florida.  We were left with an odd group of people, but it still turned out well for me.  I'm not sure how two young adults and my son-in-law felt about spending that much time with grandma.  I got to visit with some very good friends I hadn't seen in a long time.  That was very special.  We ate at some fun restaurants.  They ordered alligator, fried green tomatoes and hush puppies to name a few.  I even branched out a little.

We also spent some time at the beach.  Our house was just a short walk away.  It was a full moon during our time there, and so beautiful to see it rising.   

It wasn't the vacation any of them had planned, but I really appreciate that they included me.  If I didn't want to do some things, they understood.  One day they went to the Kennedy Space Center, and I stayed back to explore a bit.

I am now home and back to reality.  Spring is on it's way to Wisconsin, but it isn't here quite yet.  The temperatures are slowly rising, the grass is turning green and the ice is gone, making room for the migrating ducks.  It is truly a rebirth.  Everyone is back in good shape.  The strange part of the virus is that it hit all the men in the family.  Six in all but none of the girls.  2022 will be a spring to remember.

"Whatcha Got" Soup

I have a Facebook friend I have never met in person.  She is the kindest and most upbeat person.  I became friends with her after seeing her on a local cooking show.  She was known as The Cookie Lady, and I'm always fascinated with people who can flawlessly ice cookies.  I don't have that kind of patience.  She is retired from full time cookie making but still appears on the television show now and then with delicious recipes, she loves her family and has even written a cookbook.  A few years ago I posted another one of her recipes.  http://www.thecabincountess.com/2015/10/cranberry-wild-rice-bread.html  Several times over the past few years, she has mentioned making a "whatcha got" soup. Thank you Christine because I started doing that too.  I am not sure how she does it, but I make some variation of this basic soup almost every week with the intention of freezing some.  I have CorningWare 20 oz. mugs with covers that are perfect for freezing a single serving portion. It's good in theory but I usually end up eating it up before it gets to the freezer. 

This is the basic soup recipe.

 

 

Sauté any vegetables you have on hand or anything that needs to be used up…onions,  carrots,  celery,  sweet potatoes, white potatoes, peppers, garlic, any combination that works for you.  I usually have cut up peppers and onions in the freezer for omelets, and they work great in the soup.  You can buy diced sweet potatoes, mixed veggies and many others in the freezer department of your grocery store.  It's amazing what is available if you just look,  and you can have them on hand if you don't have fresh vegetables.

In this batch I diced a small onion, two large carrots, two stalks of celery, two cloves of garlic, a cup of shredded cabbage and a bag of frozen green and yellow zucchini.

After sautéing add:

1 can diced tomatoes

1/2 teaspoon dried basil, oregano or Italian seasonings, salt and pepper

1 carton of any broth (vegetable, beef or chicken) or 4 cups of homemade broth

1 cup dry macaroni or (cooked) rice

Simmer for 15 min. or less until the macaroni is done but not mushy.

There is no meat in this recipe but you could add beans or meat for protein.  If it’s too thick after adding the extras, add water or more broth.  

This is the batch with sweet potatoes, peppers and rice.  Making this soup doesn't take much more time than opening a can, and it is "real" food.

Instant Pot Macaroni and Cheese

I haven't blogged for several months.  I started the blogging journey at the end of 2012, and I have written about everything there is to know about me and my life.  I started a few blogs,  but they are just sitting in the queue and haven't been finished.  If I can't get excited about the topics, I can't expect anyone else to either.  Today, however, I wanted to write down a recipe so I would know where to find it.  One thing about blogging is I can easily search my favorite posted recipes.  I have told several people about this easy peasey way to make Macaroni and Cheese in the Instant Pot (digital pressure cooker).  It can be made in less time or at least the same time as boxed mac and cheese plus it doesn't have that fake powdered mystery cheese.  This is a small two serving recipe but you can double, triple or quadruple for a larger quantity.  The timing is the same...4 minutes.

Instant Pot Mac and Cheese

4 oz. elbow macaroni (about 1 cup)

1 tbsp. butter

1 - 1 1/2 cups water     Some pressure cookers require a minimum amount of water to work properly.  Check your instruction manual.  I have one pot that only needs 1 cup minimum and another that requires 1 1/2 cups.  This minimum amount of water only applies to this small serving recipe.  If you double the recipe, 2 cups of water is enough for all pots and so on. 

1/2 t. dry ground mustard (optional)

1/8 t. pepper

1/4 cup evaporated or whole milk 

1 cup shredded cheese (any mixture you like)  I used Sharp Cheddar and Monterey Jack

In the Instant Pot combine the dry macaroni, butter, water, pepper and mustard

Close the lid and manually set the pot to pressure for 4 minutes. 

Quick release when the time is up.  Check to see if the macaroni is cooked the way you like it.  Set the pot to saute and stir, adding 2-3 minutes more if needed.

Add the milk and cheese.  Stir until the mixture is thick and creamy.  Salt to taste.

If you don't have full fat milk or evaporated milk or even if you do, another tablespoon of butter and a splash more milk will make it creamier.  

Easy (Not Pretty) Remedy for Soil Gnats

Before I blog about any more of the excursions my daughters have taken me on, I want to write about a discovery I made.  I love the outings and I have written about most of them, but I have not published all of them.  I will eventually and they will be included in my blog books.  As much fun as they are for us, it probably isn't that interesting to read about.  You all know how it is looking at thousands of other peoples vacation photos.  

Although this problem may be well known to gardeners, until recently I have never had any experience.  It all started in the fall of 2020.  It may have started years before, but I didn't notice or make the connection.  The problem is soil or fungus gnats that hatch in the soil.  I always thought they were probably fruit flies even if I didn't know the source.  I was wrong. 

I love putting my house plants outside for the summer.  They thrive much better with fresh air, natural humidity and sunlight.  The downside is that some plants get infested with various insects like aphids, leafhoppers, or in my case soil gnats.  These gnats look like little tiny mosquitoes or fruit flies.  It seems that last year my lemon trees were infested the worst.  I'm not sure why.  So far this fall, I have very few so it may be connected to weather conditions during the summer.

These gnats are not very harmful to the plant, but they are very annoying when they fly around, although they stay pretty close to the plant during the day.  I did notice they are attracted to light because I see them at night when the reading lamps are on or sometimes in a sunny window.  These gnats lay eggs in the top 2-3 inches of soil.  I have found the drier you can keep the top soil, the less gnats.  

There are remedies.  You can re-pot the plant in fresh sterile soil,  there are insecticides which is never my first choice, or sticky strips to catch the gnats as they fly around.  The sticky strips can be bought from a garden center or online.  There are several brands to choose from and they work fairly well.  

These are small yellow sticky strips.  They come with a small clip and are placed in the flower pot.  As the gnats fly around and land, they stick.  The more you catch, the better because they can't lay more eggs and start the hatching process all over.  These sticky strips don't contain any poisons so they are safe for pets, although getting the sticky strip off a dog or cats nose may be problematic.

The only problem I have found is availability.  I ended up ordering them online.  Before I discovered these strips, I used another sticky strip that worked well.  Last fall when I realized I had a gnat problem, I had to come up with a solution fast and didn't have time to shop around.  I went into our storeroom and discovered a package of sticky mouse traps.  I think we picked it up at a liquidators store for pennies, but we never used them.  I thought it was inhumane, and I didn't want to dispose of a mouse either dead or alive stuck to a board. 

I took one of the 5 x 8 inch sheets and cut it into strips.  I then folded the strip in half, peeled the protective paper and clipped it to a pinch clothes pin.  

As an experiment I tried both the yellow strips and the glue board strip.  They both work.  I caught one gnat so far on this plant but I just put it out a couple days ago.  I do know that if the gnats show up, I will be ready.  It isn't a pretty solution, but it is an easy inexpensive solution to an aggravating problem. 

More 2021 Fall Colors at Rib Mountain

For years we have talked about going to see the fall colors from Rib Mountain in Wausau, Wisconsin.  Fall colors are so hard to predict.  A person can watch the color map diligently and still miss the peak color.  We have planned trips and then a big wind or rain storm would blow through and spoil the beautiful colors.  So when my daughter called to see if I was interested in going this year, I said absolutely yes.  Then I started watching the weather forecast.  Of course, we had gorgeous weather all week but the weather persons said the weekend would be cloudy and a 50/50 chance of rain.  It is one hundred miles to Wausau from my house.  It's a long way to go only to be disappointed by bad weather.  It took my eleven year old grandson to say, "let's just go! It will be fun anyway."  So we did.  My daughter Heather and her son Ewan picked up both grandmas, and we headed "up north".  

It was sunny and very warm when we left, but the weather can change dramatically in a hundred miles.  I would see some clouds in the distance and think things will change soon.  I'm usually not such a pessimist, but it has happened too many times.  It's Wisconsin after all.  The temperature has been in the 80's which is strange for October.  We even saw several lilac bushes full of blossoms and very few leaves.  Lilacs bloom in May in Wisconsin, not October.  Another sign global warming is real?

I'm happy I was so very wrong and so were the weather people.  The day and the weather were perfect.

We pulled into the Granite Peak ski area about one o'clock.  We had stopped for lunch earlier because we didn't know how long we would be at the park. 

 

 

We had reserved tickets online, but needed to go to the ticket counter to get our wrist bands.  The line was quite long, but it moved along.  It's always fun to people watch.  We could watch others leaving on the chair lift and returning so we knew exactly what we were doing by the time we reached the front of the line.

 

 

Before we knew it we were next in line.  Anyone who skis knows how this works, but this was only the second time I had been on a chair lift.  My husband and my daughters skied, but I did not.  I would go along sometimes and sit in the lodge with hot chocolate and my knitting.  My niece got married at a beautiful ski resort in Michigan, and the guests were taken to the top of the hill by a ski lift.  That was also a beautiful day. 

The trip up the mountain was great.  We stopped a couple times and it felt like the top of a ferris wheel, swaying in the breeze a bit.  On the way we stopped right to the side of some trees.  In the trees were some beads, several pairs of shoes and even a bright red bra.  I saw several people riding barefooted but I thought they just didn't want their flip flops falling off.  Maybe they threw their shoes onto the trees.  Seems to be a pretty expensive prank.  As for the bra...um, I didn't look to see where that came from.  

There were beautiful trees along the way.  The sumac was bright red, the birch trees were yellow and other trees were various shades of red, orange and gold.  It was a beautiful contrast to the trees that were still green.  

When we reached the top, we could stay on the chair lift and return or get off and explore for a while.  We got off.  Rib Mountain State park has a lot of trails and big rock formations.  Ewan was in his glory being the mountain man that he is.

There were stone steps and pretty ground cover.  People were hiking and running the trails.  It would be a great place to visit without the ride on the ski lift.  

The view of Wausau from the top was breathtaking.  Pictures don't do it justice.  I could never capture the real beauty of the area.

Eventually we returned to the lift and headed back.  It was just as much fun going back down.  

It was a wonderful warm and sunny day.  I am so grateful for the family I have and that they include me in their life.